In light of National Caregiver Month, I wanted to share some tips from the Parkinson Disease Foundation on being in a “care partnership”:
I prefer to call this relationship a “care partnership” because I believe it is one that is truly reciprocal. As a person with PD adjusts to physical changes and, at times, to changes in personal independence, the care partner must learn to adapt to a different relationship dynamic and perhaps to greater “ownership” of duties that their partner had previously handled.
- Your experience is unique – respect your own journey
- Even though you didn’t sign up for this role, it doesn’t mean you can’t be GOOD at it!
- Have open communication
- Don’t let the disease define you
- Find a GOOD doctor and go as a team
- Don’t apologize for getting a second opinion, that’s taking care of yourself
- Learn about PD step-by-step
- Educate others on PD
- Actively find support to help you manage the day-to-day AND to share your thoughts, feelings, experiences and valuable information
- Discuss future financial and medical plans NOW
- Remember: SELF-CARE IS NOT SELFISH!
For more details on these items, check out: www.pdf.org/pdf/fs_pd_partnership_08.pdf